On May 27, 2019, Trevor came to his mother, Josie, hand on his forehead, with a severe headache and said, “Mom, something is wrong. I need to go to the…

Wes spent his first three days on a ventilator. It was determined that Wes had suffered a grade 1 (the least severe type) intraventricular hemorrhage (IVH), better known as bleeding…

“Sam was born 5 weeks premature,” his mother, Barbara recounts. “The impact this would have on his future development was completely unclear. We were told that we just had to…

Owen had a condition called aqueductal stenosis, which means that the third and fourth ventricles of his brain did not develop properly, causing his brain to fill with spinal fluid…

MaKiah was born premature at 29 weeks. When she was 15 months old, her parents were told that she had cerebral palsy. When she had her first seizure at 18…

“I think I was about 11 or 12 when the back pain really started to bother me,” Kyra says. “The pain was relatively minimal and it wasn’t something I couldn’t…

Harriet’s cancer journey began in August 2019, in her pediatrician’s office – Kelly took Harriet in to the doctor for an ear infection that wasn’t going away. But when a…

On April 1, Harper’s doctor called Sarah to tell her the news that had been lurking in the back of her head ever since Harper started spiking frequent fevers in…

At 9 months old and after two surgeries, one to drain fluid from around Brice’s brain and another to biopsy a tumor, came the final diagnosis: embryonal tumors with multilayered…